Saturday, April 25, 2009

Sunny days are here....

And I hope they stay!!

W can not be stopped. With his walker, he is a walking fool. He can almost walk anywhere. I say almost because some places are tricky, ie., grass, steps, some rocky areas. He has some new leg things (they are some assistive undergarments). These tera togs are supposed to help him keep his feet pointing forward. Since the poor child can turn his left foot backward! We have only had them on him twice and they seem to do there thing but man they are hot and bug the poo out of him.

Last month we got a second opinion on his upcoming tendon transfer surgery. And boy are we glad that we did! We love this new dr!! He thinks the tendon transfer surgery would be an unneeded surgery for W for all the reasons we thought is was. This dr, which saddly is still 3.5 hours away from us, is the man for us. Right of the bat he noticed something that I have been trying to get others to notice for close to 8 or so months. W has tibia torsion. His bones are turing in from his knees down. He is going to have to have surgery to fix it. It is a surgery that we get to plan in the close but distant future. He will have his legs broke and turned and then pinned in place. He will be in full leg casts for 4 weeks and below the knee casts for 4 weeks or longer. It is going to be tough but to know that one day my child's feet will be pointed forward just makes me so happy. Dr. D was so happy with the way W walked with his walker and the fact that he walks just as good without his DAFOs on. My boy will not be held back!! Dr. D has very high expectations for W and believes that one day he will be walking without any support other than some DAFOs. Talk about a weight being lifted off my shoulders!!

Since W has not gained any weight for close to 7 months, he is now seeing an OT for eating therapy. She has helped him a little. He is eating more fruits than he ever did and his at least putting green things in his mouth, not yet swallowing them but is getting them in his mouth! With OT, we have noticed that W doesn't move his tongue well at all. She believes this is also the reason why his speech is lacking! He says mama, bip, and oh man. If he is talking to or about a person he says, "mama". If he is talking about anything else he says, "bip". And he says, "oh man" when the time is needed. So hopefully we will be able to get his eating and his speech taken care of at the same time!!

Things are looking up. W is becoming an amazingly wonderful (if you could say those words about a toddler) toddler. I am loving every day!